Happiness rippled through the building last night as the kids that were able to leave their rooms went up to the top floor movie theatre where popcorn, soda and candy awaited them. Rafa meanwhile was having a party of his own in his room. He’s been on a cupcake / potato chip and banana blend (dextrose, saline and potassium IV fluid) but through the night as he managed to take more milk from Mum his party drink was decreased and completely stopped. (That took a bit of work, mainly because it looked like his throat was still sore from the tube, but eventually he remembered what to do).
We tried taking the cannula off, but that didn’t go so well, so it’s still on now but we have reduced his CPAP schedule to “as required” and he hasn’t needed one since late last night.
This morning was even more exciting. We’ve just been given our ticket to ride out of the ICU and into the general care children’s ward. Rafa’s bed is sure building up the bed miles but that’s good when we’re heading in the right direction.